BEYOND INVISIBLEBeyond Invisible™ is an organization focused on:
1. The empowerment of women with Invisible Diseases 2. The Education of our communities about these diseases. |
You Have A VOICE!
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Lupus comes in many forms. It is what some call the “invisible disease”. It is an unpredictable and misunderstood autoimmune disease that ravages different parts of the body.
Lupus is difficult to diagnose, hard to live with, and a challenge to treat. It is debilitating, destructive, and can be fatal.
Since being diagnosed in 2014, I have met men, women, and children from all walks of life who are living and/or suffering with this disability. Currently, there is no known cure for Lupus. Some of my personal symptoms include debilitating joint pains, excruciating headaches and memory loss. Some of my personal experiences include extreme weight gain, moments of depression, and being overlooked as someone with a disability simply because I don't meet the “exterior/cosmetic” requirements of someone living with Lupus.
Through my interactions with others in my Lupus community, I realized that this is not uncommon. 90% of the 1.5 million Americans living with Lupus are women. Many women hide the fact that they have Lupus from their family, friends, coworkers, etc., for fear of being ridiculed or not taken seriously because they may not “look” sick. For some, it takes years to be diagnosed and we walk around thinking that we are imagining these weird and painful symptoms. There is a feeling of invisibility among many Lupus patients. It is for that reason that in 2015, I founded Beyond Invisible™.
Beyond Invisible™ is an organization focused on two things:
1. The empowerment of women with Invisible Diseases
2. The Education of our communities about these diseases.
Lupus is difficult to diagnose, hard to live with, and a challenge to treat. It is debilitating, destructive, and can be fatal.
Since being diagnosed in 2014, I have met men, women, and children from all walks of life who are living and/or suffering with this disability. Currently, there is no known cure for Lupus. Some of my personal symptoms include debilitating joint pains, excruciating headaches and memory loss. Some of my personal experiences include extreme weight gain, moments of depression, and being overlooked as someone with a disability simply because I don't meet the “exterior/cosmetic” requirements of someone living with Lupus.
Through my interactions with others in my Lupus community, I realized that this is not uncommon. 90% of the 1.5 million Americans living with Lupus are women. Many women hide the fact that they have Lupus from their family, friends, coworkers, etc., for fear of being ridiculed or not taken seriously because they may not “look” sick. For some, it takes years to be diagnosed and we walk around thinking that we are imagining these weird and painful symptoms. There is a feeling of invisibility among many Lupus patients. It is for that reason that in 2015, I founded Beyond Invisible™.
Beyond Invisible™ is an organization focused on two things:
1. The empowerment of women with Invisible Diseases
2. The Education of our communities about these diseases.
LEARN MOREWHAT IS LUPUS? What are the symptoms? How is it treated? How can I support someone with Lupus?
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EVENTSFind upcoming events to support finding a cure for LUPUS and other invisible diseases.
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SUPPORTYour loving donations is what makes it possible to continue research for the Cure. Find out how you can help SLAY LUPUS!
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